NAVIGATING THE FIRST 30 DAYS
Part 1
Embracing Your Feelings
What to Expect
The first month is a rollercoaster of emotions - overwhelmed, sad, angry, relieved. Sometimes the physical recovery feels easier than the emotional one, and that is completely normal. Before you even worry about leaks, there is the challenge of simply getting used to the pouch. The hospital handed me a box of bags and said, ‘here you go,’ as if I knew what to do. Suddenly I had this new best friend attached to my abdomen, and I had to learn how to live with it. That’s why support groups are so important - no one should have to figure it out alone.
My Advice
Acknowledge your emotions - There is no "right" way to feel. Give yourself space to process everything.
Patience is key - Healing is a process, both physically and emotionally. Be kind to yourself as you adjust. You're doing the best you can.
Lean on your support system - Talk to a trusted friend, family member, or join an online community. You are not alone, and I promise you, sharing helps.
Part 2
The Basics of Pouch Care
What to Expect
I know how scary it can be when you have your first leak. It feels like a total disaster, and you might worry it will happen again. It is okay that your bag leaked. It happens to everyone, and it is how you learn. Pouch changes can also feel clunky and awkward at first, but with a little practice, it becomes second nature.
My Advice
Gather your supplies - Keep everything you need for a pouch change in one easy-to-reach place. Organization is your best friend.
Find the right fit - It’s worth it to work with your nurse to ensure your wafer fits perfectly. A proper seal is the best way to avoid leaks.
The golden rule - Always have an emergency kit with supplies when you leave the house. Having it on hand will give you so much peace of mind.
My Reflection
After surgery, I was fortunate to receive insurance-funded home care. I didn’t realize how valuable those brief 15-minute visits would be—not just for medical guidance, but for emotional support. My nurse taught me things I never would’ve considered, from caring for stitches to managing my surgical bag. Those check-ins made me feel less alone, and I’m glad I didn’t end them too soon.
Part 3
Diet & Daily Life
What to Expect
You might be anxious about reintroducing food, scared of how your body will react. I remember feeling nervous about my first meal out with friends. It's also easy to feel tired and like you can’t do the things you used to.
My Advice
Hydrate, hydrate, hydrate - Drink plenty of water throughout the day. It's an easy and essential way to stay healthy.
Listen to your body - Reintroduce foods slowly. Pay attention to what works for you and what doesn't. You will become an expert on your own body.
Start moving gently - Begin with short, gentle walks. Listen to your body and do not push yourself. Your body has been through a lot, so celebrate the small victories.
Part 4
When to Call the Doctor
What to Expect
Feeling panicked and thinking something is wrong is completely normal, especially in the beginning. It’s okay to call your doctor or nurse anytime you feel worried or have questions. They are there to help you, and no question is too small.
My Advice
Call the doctor if you experience any of the following:
Your stoma turns deep red, purple, or black
You experience persistent, severe pain or cramping
You have a fever, feel nauseous, or cannot keep fluids down
You notice consistent leakage of the pouch and can’t fix
Part 5
Share Your Story and Seek Out Resources
What to Expect
One of the most important lessons I learned early on was the power of sharing my story. Opening up not only brought me unexpected support but also connected me to resources I never would have found on my own. Here are a few examples of why speaking out matters.
My Advice
Reach out - You will be amazed at how many people either live with this themselves or know someone who does - and how much knowledge opens up once you begin talking about it.
Share your story - By simply mentioning my journey to my hairdresser, I discovered Canada’s largest supplier of ostomy products, who has guided me through bags, glues, and everything in between.
Avoid isolating - If I had stayed silent, I would have felt far more isolated and frustrated about leaks, bag issues, and why things were not working - the medical system often does not provide these kinds of practical resources, so connecting with others becomes even more important.
Part 6
A Message of Hope
What to Expect
The first 30 days are a lot, but they are also the beginning of an amazing new chapter. Soon, the new routines will become just a part of your day. You will start to feel more like yourself, only this time, you will be even stronger.
My Advice
Your ostomy bag is not a limitation - It is a tool that gives you back your life. Embrace it for the freedom it provides.
Find your community - Connect with others who understand what you are going through. There is a whole community waiting to support you.
Celebrate the small victories - Every day is a step forward. You are strong, you are brave, and you are beautiful. I am so proud of you.
There is no perfect way to navigate this journey - only your way
Some days will feel impossible, while others will surprise you with strength you never knew you had. What matters most is remembering that you are not alone, that community and support are out there, and every small step forward is worth celebrating.
This is not the end of your story - it is the beginning of a new one. Trust me, I know, because I have lived it.
Before & After Diagnosis Guide